Miriam is a lovely friend and fellow blogger. We met through our Facebook pages and online groups that we are both in. She’s always supportive and encouraged me to keep blogging during times I felt like giving up. Here are her answers to my questions:
Tell us a little about you and your family.
My name is Miriam and I live in Scotland. I have a husband, two children and a large tank of tropical fish. I have a degree in primary school teaching but I am currently a full-time parent carer.
What is your connection to autism?
My husband is autistic, though he wasn’t diagnosed until he was 59. Both of my children are autistic.
What made you start a Facebook page/blog?
Both were started for very different reasons and both serve a different purpose for me.
My blog (www.faithmummy.wordpress.com) was started on my 36th birthday. I realised I was closer to 40 than 30 and wanted to do something worthwhile with my life but having two four-year olds, one of who is significantly disabled, I felt so alone and stuck. My son had just been diagnosed with a genetic tumour growing condition the month before and I thought writing my story might help others. I wrote my first blog called ‘the story so far’ and within hours over 800 people had read it! I asked my brother (who wrote a blog for his work) what I should do next and he said I should update it. I asked how often and he said weekly! I was shocked but the next week I wrote more and for the last six years and three months I have written a weekly update.
When my first blog was published on another site after a few years everything changed. I began getting not only a lot of abuse and hate but a huge amount of support and hundreds of strangers friend requested me as they wanted to read my weekly updates. It was then I felt I should start a page where I could have followers and post updates without taking away from the intimacy that I posted on my own wall for friends and family.
Do you think there is enough support and resources in your area for autistic people and their families?
That’s a great question. I think much depends on the individual needs of families and children. There are lots of support groups and groups for children but not everyone is able to access these for various reasons. I also think there is very little nationally for more severely affected children like my non verbal son.
What are your thoughts about how autism is portrayed in the media?
The media, by nature, have an agenda and want views so will always naturally be drawn to autism from the view of ‘Will people watch this?’ That means they are most likely to use extreme examples and in that aspect it can portray autism as extreme one way or other. The other factor is that there is no such thing as a ‘typical autistic’ which makes their task almost impossible. The more they feature it though the better for everyone.
What 3 books, related to autism, would you recommend to people?
It very much depends what the person is looking for. Story wise I love ‘After Thomas’ which is a story of one autistic boy and how getting a support dog helped him. My best feel good factor one would be What we love most about life by Chris Bonnello. As a general knowledge about autism book ‘the ten things everyone with autism wants you to know’ is good.
What would you like the world to know about autism?
That while every autistic person may have difficulties in social awareness and understanding, rigidity of thinking and have some repetitive movements plus communication difficulties that doesn’t mean they are any less than anyone else. For some autism is very much a major disability but for others it is more a difference. It’s about accepting people regardless.
You can find Miriam on Facebook here: Faithmummy